Catalog of Holdings

Study Report

Study Number: QG-019-001-1-1-United States-ICPSR-1982

Subject Area: Medical and Health

Bibliographic Citation: National long-term care survey, 1982-1984.  [machine-readable data file] / U.S. Department of Health and Human Services. Office of the Assistant Secretary for Planning and Evaluation  [principal investigator(s)] / Ann Arbor, MI: Inter-university Consortium for Political and Social Research  [distributor].

Originating Archive Number: 8654

Access Status: Access limited to UW-Madison campus

Documentation: 4 volumes hard copy.

Abstract: The 1982-1984 National Long-Term Care Survey (NLTCS) was designed to provide a database describing the population of chronically disabled elderly persons in the United States in terms of their health and functional status, and their patterns of use of Medicare, hospital care, home health services, and institutional care. The 1982 Survey focused on the home-dwelling impaired elderly aged 65 and over. A Survey of Informal Caretakers of those elderly respondents was also conducted in 1982. Information was collected on the number and type of physical limitations affecting aged persons, the kind and amount of help received by impaired individuals, the costs of health care services, the ability of impaired persons and their families to pay for care, and the number and characteristics of impaired individuals not receiving care. The linked Survey of Informal Caregivers collected data on demographic and socioeconomic characteristics, the relationship between caregivers and impaired persons, the kinds of care provided, expense and time costs, inconveniences and problems, mobility and work restrictions due to the caretaking, and feelings about caregiving. The 1984 Survey not only reinterviewed the surviving 1982 home-dwelling cohort, but also interviewed for the first time the chronically impaired in the original screening file who in 1982 had been institutionalized, or who had become 65 and impaired since 1982. Further data were collected from the next-of-kin of deceased members of the 1982 and 1984 samples and from Medicare Part A and Part B Home Health Agency payments during the years 1978-1986. Thus, the expanded scope of the 1982-1984 NLTCS recorded changes in the elderly population over time with respect to impairments, use of medical services and informal care, residence at home or in institutions, and mortality.

SOURCE: personal interviews, death records, and Medicare records

UNIVERSE: Persons in the United States 65 years old and older with limitations in Activities of Daily Living (ADLs) or Instrumental Activities of Daily Living (IADLs), who were either living in the community (1982 and 1984 surveys) or institutionalized (1984 survey only).

SAMPLE: The original 1982 sample was drawn using a two-stage procedure. A sample of 35,790 names of persons aged 65 or over were drawn from the Medicare Health Insurance Skeleton Eligibility Write-Off (HISKEW) file. These persons were then screened (see Part 2) by either telephone or personal visits to see if they manifested a chronic limitation of Activities of Daily Living (ADLs) or Instrumental Activities of Daily Living (IADLs) due to impairment. For those 6,393 persons who were identified as living in the community and having a chronic impairment, a detailed household interview was conducted. Persons identified as institutionalized were not interviewed in 1982, although their status was noted. A linked survey of 1,924 informal caretakers named by the chronically impaired was also conducted in 1982 (see Part 3). The 1984 cohort was composed not only of the surviving members of the 1982 sample (whether still at home or then institutionalized), but also of those who had been institutionalized in 1982. The screening procedures were repeated for a 47 percent sample of the originally nonimpaired, and a new sample of 4,916 persons who had become 65 years of age by 1984. Interviews were conducted with the chronically impaired, whether institutionalized or at home. For those members of the 1982 or 1984 samples who had died, interviews were conducted with the next-of-kin. The total 1984 cohort numbered 25,401 (which included 6,264 community-living impaired, 1,773 institutionalized impaired, 3,219 deceased, and 14,415 community-based nonimpaired).

NOTE: Part 1 is a hierarchical file with four distinct record types: the sample person record, the helper record (up to 20 per sample person), the household member record (from 1-20 per sample person), and the children's record (one per sample person). Parts 6, 7, 8, and 9 are extracts of this hierarchical file. For these flattened rectangular files, users need to refer to the OSIRIS dictionaries for column locations and the codebook for code explanations. The Medicare file (Part 5) includes data in packed decimal (binary) format. The type of billing institution (in column location 12) determines which of two codebooks (Home Health Agencies, or Inpatient/Skilled Nursing Facilities/Christian Science) is to be used with the data. The age distribution for the 1982 survey is 65-74 (N = 10,790), 75-84 (N = 6,991), and 85+ (N = 2,704). The age distribution for the 1984 survey is ages 65-74 (N = 12,720), ages 75-84 (N = 6,470), and ages 85 and over (N = 2,470). The data contain blanks. Documentation for the 1984 data was prepared by Duke University. The previous title for this survey was the National Long-Term Care Survey and National Survey of Informal Caregivers, 1982. In 1989, the NLTCS replicated the 1984 wave with the addition of six-month telephone followups of subsamples of institutionalized elderly and caregivers (see NATIONAL LONG-TERM CARE SURVEY, 1989--ICPSR 9681). The data are intended for use in establishing rates of impairment among the elderly, the use of alternative means of meeting their needs for care, and the interchanges between home and institutional residences over time.

EXTENT OF COLLECTION: 9 data files + OSIRIS dictionaries + SPSS Control Cards.

DATA TYPE: survey data

DATA FORMAT: LRECL, LRECL with SPSS Control Cards (Part 1 only)

TIME PERIOD: 1982-1984

DATE OF COLLECTION: June-October 1982, October 1982-January 1983, and June-October 1984

SUBJECT TERMS: aging. demographic characteristics. friendship networks. government services. health. intra-family relations. kinship patterns. living conditions. medical care and histories. mental health. personal finances. public health. public programs. quality of life. senior citizens. socioeconomic indicators. United States.

Media/File Reports:

ICPSR Direct